A VERY EXCITING DAY FOR MY PRECIOUS COUSIN REESE & HIS COUSIN EVIE & ALL OF THOSE WHO LIVE WITH SMA

I wanted to share this with you! im so excited for my cousin Reese! YESTERDAY WAS A VERY EXCITING DAY FOR OUR FAMILY!

THIS IS SO IMPORTANT FOR THE FUTURE OF MY PRECIOUS COUSIN REESE MCDONALD & SO IMPORTANT FOR THE FUTURE OF REESE'S COUSIN EVIE! GO REESE & EVIE! & GO STOP SMA!!! listen in as Reese & evie get their names mentioned!


(COPIED FROM STOP SMA via facebook) Sending a BIG THANK YOU TO Congressman Gregg Harper!! Here is a clip of Congressman Harper speaking in support of the National Pediatric Research Network Act of 2013. It was an awesome experience yesterday to hear so many of those in power speak up on behalf of this important Bill, SMA and so many families that are working hard to end this disease everyday. The bill passed yesterday evening and will now go to the Senate where Mississippi's Senator Wicker is already a co-sponsor!!!

http://youtu.be/Kzy5eyXIUJ4